Hi folks! In 2007 I developed a very rare skin condition called Lichen planus pigmentosus (LPP). Also known as Erythema Dyschromicum Perstans (EDP). The grey skin started in the folds of my arms and underarms. Then it started in my face and gradually increased. I got diagnosed by skin biopsy. It’s more common in India.
I now am about 98% cured. My face and body look completely normal, although slightly tanned as compared to before.
So how did I get cured?
- Avoid sun exposure on the affected part ie face. I started to wear a hat every time outside and an amazing completely natural powder with sunscreen made by Inika. Possibly any powder sunscreen would work. I also would keep my arms covered. I even avoided going out during the high UV parts of the day. This reduces the pigmentation being produced.
- Avoided all creams / artificial makeup on the affected part. I stopped using thick MAC foundation to cover up my skin. I didn’t use any sunscreens as my skin would react. Do a test patch first.
- Expose to the sun the parts that are unaffected. This is a very important part.
I noticed my skin would improve in Summer, but I always wore a hat. So I would tan my legs which weren’t affected and my face would become less grey. In fact this is the main cure. I went to Singapore and sat by a pool around 5PM in Summer and my facial skin improved (I was still wearing a hat). So I believe this skin problem is related to lack of sunlight as I got it 1 year after moving to a city (Seattle) with low levels of sunlight. I believe it is immune system related and may be a kind of “allergy or rash”. I tried a popular, very strong chemical peel which didn’t work at all.
My dermatologist wanted me to try Colchicine which is also used to treat it but it has side effects affective digestion. Other dermatologists tried ND Yag laser (worsening) or told me that nothing’s possible.
Since then, I have discovered some other powerful treatments which I haven’t tried eg intravenous Glutathione and Vitamin C and it looks really good. I wish I had found out about it before. I don’t really need it though, unless I want to go back to my original super fair skin.
This skin condition really affected my interaction with people and I became very self conscious. It’s important to have supportive people around you and ignore unsupportive people (these can be your closest family even). Think of the unsupportive people as a bit ignorant 🙂 in that aspect and you can feel a bit sorry for their low level thinking :). Also possibly talk to a psychologist you really like and get along with who understands you well.
If you can, it’s important to try to open up to your friends who most likely will be very understanding. They may even have troubles of their own to share with you.
Most people probably don’t even notice it and who you are as a person is far more important. Just smile, be a yourself, a good and kind person, and people will love you no matter what you look like.
I really do believe ugliness is on the inside.
You can meet the nicest person and they will look pretty good to you, and you’d want to be around them more, and you can meet a handsome yet shallow and horrible guy and they aren’t attractive at all.
Friendship is truly based on personality alone.
I met many people who couldn’t even tell that I had a skin problem. We make the problem much bigger in our heads.
I know this is all theory, and in real life, it’s much much harder to do – so it’s OK. I was only able to truly accept my skin condition when I didn’t have it anymore.
But if you can make something beautiful out of nothing, try it.